On Monday of last week, Parson was released and we were able to go home. Since then, she has had a really rough time. Wednesday night was not a good night and Thursday morning began the same way. On Thursday morning, I made a call to Dr. Mallory and he said for us to head back to Texas Children's. PDiddy's fan club was glad to welcome her back from her short trip away.
Whee. Up & down. Down & up. First night in PICU, then back to PCU for a few days. Parson spiked a high fever and had a high heart rate over two days so they moved us back to ICU yesterday. Now the fever is gone & heart rate has returned to normal and we have moved back to PCU. The doc just came to tell me that a blood culture has shown bacterial growth, so we know the source of the fever. Bless her heart she is still feeling pretty crummy, but she is a trooper.
We celebrated Darby's 6th birthday this weekend. "Super Dad" worked overtime to make sure things were as close to perfect as possible. After celebrating at Chuck E Cheese, they headed to Houston to celebrate with us. It wasn't the ideal situation, but worked out just fine.
Today we began the "full transplant evaluation process" for Parson. Lots of blood work, tests and meetings this week. These are all parts of the process that will be presented before a committee that will determine if Parson is ready to be "listed" for transplant. The transplant committee will meet on April 4. Dr Mallory is hoping to have everything "ready to go" for the meeting April 4th.
Yea, roller coasters are alot of fun - I absolutely LOVE the thrill - but lately it has been more like the "runaway mine train" or "river of no return". Blue spells, multiple ambulance trips, birthdays away from home, unexplained blood infections, and transplant talk -- I am once again smack dab in the middle of Plan B. Friends - it certainly isn't comfortable for this control freak, because I have never been here before. This self professed "fixer" can't fix any of this.
Thankfully, my savior understands my hard-headed, control freak, fixer tendencies and is right here in the midst of Plan B.
"The Lord is good, a Strength and Stronghold in the day of trouble; He knows (recognizes, has knowledge of, and understands) those who take refuge and trust in Him." Nahum 1:7 (AMP)
“The steadfast of mind You will keep in perfect peace, Because he trusts in You. Isaiah 26:3
Plan B is definitely revealing who I really am. I am so thankful to have a Savior by whom I was fearfully & wonderfully made --character flaws, personality warts and all. The Lord is good! A strength and stronghold in the day of trouble! He understands me and provides me with perfect peace. He and I had a long talk today and He reminded me that this is only Plan B for me - this is His Plan A and He has got this under control. I have buckled my seat belt and plan to enjoy the roller coaster ride. All clear.
Jennifer thank you for sharing your journey of faith. I can see how God is growing this mustard seed wonderfully into an "herb that is greater than herb, and is large enough to provide shelter for others." Know that we are lifting you up in prayer and that God's Angels are sustaining Parson and your family. Ps 91 Janelle Templeton
ReplyDeleteDear Jennifer, God is truly holding you and your family up! My prayers will be with you always and please let me share my family's verse with you: "Be strong and courageous! For the Lord your God will never leave you nor forsake you!" Josh 1:9 My husband, too, was a transplant patient (2 single lung transplants) and even though God chose to take him home, I am still thankful for his life. Please remember that our gracious Father is a great Healer and never has plans to harm us! God's peace to you and blessings always! Laura Bichler Hern (friend of Sandy Fairleigh).
ReplyDeleteJennifer: We and our church (Arapahoe Road Baptist Church, Centennial, CO) are praying for you. -- Steve and Judy
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