Sunday, May 19, 2013

Grace for What Is.

I saw a cross in the hospital gift shop that had a great saying.... "God does not give us grace for what if. He gives us grace for what is."  

"My grace is sufficient for you, for my power is made perfect in weakness." - 2 Corinthians 12:9

After a few good days, Parson took a nosedive on Friday and she was transferred back to PICU on Friday night. She has had repeated episodes of respiratory distress with tachycardia (high heart rate) and increased work of breathing. She "clamps down" and she moves no air in her lungs. Not fun. Over the course of the last few days, the docs were having to use the "rescue" plan meds more often and she was not responding. The bottom line is that she fights the vent and will not allow it to do the work for her.  In PICU, they are able to give multiple IV meds that take Parson out of the equation. She receives IV fentanyl, versed & vecuronium. In addition they added precedex this go around.  These meds paralyze & sedate her so that the vent can work properly. In addition to the IV meds, Par receives methadone, Ativan, and clonidine to manage her respiratory distress.  As of yesterday morning, Par is doing much better. (Dr. Fidone came for a visit, so of course Diddy was having a good day.) Overnight, they weaned the paralytic (vecuronium) to see if she is able to manage without it. If she begins to fight the vent, she will have to be paralyzed again. The more meds she gets, the more meds she requires. Over the last week, they have had to up the dose on several meds as she has become more tolerant and resistant. The docs were amazed that she was moving and wiggling on such a "big slug" (doc's description) of paralytic/meds. 

This is PDiddy's 9am meds this morning... 9 meds going into her GButton 

PDiddy's IV med story ....

This is the IV "intersection" where all the pumps transition together into her picc line....

Each time this week when they pushed more meds or added another IV pump,  I reminded myself that His grace is sufficient.  Amazing Grace. 

I have to give a shout out to PDiddy's Posse - You girls know how to make the best of a hospital stay. Thanks to you girls -- we smell good, look good and feel good!  We feel the love - (like a big ole hug each time I think of you girls.) Thanks for the special delivery and the cute PDiddy Posse cups - that's makes for some great lemonade! 

Speaking of lemonade... The "curly headed tornado" and my baby daddy will be here to visit us soon. Ahhhh. 

I am SO thankful for His grace - it is enough. 

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