Holiday & Viagra

Ahhhhh. It was a calm and peaceful night. (Doesn't that sound like the beginning of a great story? )

Parson had a great night and is doing good so far today. They continue to tweak her vent settings and medicines. They are giving her a "holiday" from the muscle relaxer right now to see if she is ready to do any breathing over the ventilator on her own. So far she seems to be responding fairly well. These are all steps that are necessary to wean her from the vent. They have sent lots of cultures to the lab and done lots of tests to determine the source of her infection - but have found nothing so far.

Yesterday they did an echocardiogram that showed that the right side of Parson's heart was enlarged - so they started a medicine to help with that. The medicine is actually Viagra which is used to treat pulmonary hypertension in preemies and infants. (I thought you guys would get a rise out of that.) So far so good - because her levels really came down over night.

We got another roommate over night- a little fella about Parson's age. He is on a vent as well. So now there are 3 of us in our room. Our other friend is 16 years old who just had his 3rd brain surgery. We are settling in for the journey back to "normal".

Thanks so much for the prayers. We are beginning to see some slow steady improvements.